Patient Education Manager, NF1 PN, New YorkPA

This is what you will do :

The NF1 PN Patient Education Managers (PEMs) are an empathetic and trusted educational resource for NF1 patients and families. They are responsible for engaging with the local NF1 patient community via 1 : 1 meetings; conducting unbranded and branded patient education at scale through programs; and (in close collaboration with Alexions Patient Advocacy team) partnering with local and regional NF1 advocacy groups to further raise awareness of NF1 burden NF1 disease progression and NF1 PN treatment.

In addition to these responsibilities PEMs also refer patients and caregivers to Case Managers for case management support when starting on Alexion therapy and connect the NF1 community as appropriate to local advocacy networks and approved resources to best support patients and their families through the treatment journey.

You will be responsible for :

Developing in close partnership with Alexion Patient Advocacy and NF1 PN brand marketing a regional patient engagement plan that strategically supports commercial priorities

Coordinating frequently with key cross functional partners to execute local patient outreach compliantly and effectively (e.g. : Compliance Legal Marketing Market Access Medical Patient Advocacy Patient Services etc.)

Educating patients and caregivers via 1 : 1 meetings including face-to-face interactions about NF1 disease state NF1 PN treatment and Alexions patient support programs

When possible conducting impactful in-person or virtual educational events on behalf of Alexion to deliver disease and product information at scale

Building a robust rare disease network of NF1 PN advocates via active participation in local advocacy events to identify educational needs raise disease awareness and promote patient empowerment

Delivering on data driven performance objectives and effectively tracking and communicating year-to-date progress to cross functional partners and Alexion leadership

You will need to have :

Minimum of 4 years business experience in the healthcare industry or related industry

BA / BS degree advanced degree a plus

Experience engaging with patients and caregivers with rare / chronic conditions

Empathy for others with proven ability to listen well connect meaningfully and present complex information in a clear and engaging manner during 1 : 1 meetings

High initiative solid work ethic and consistent accountability

Ability to adapt quickly and commitment to react positively to frequent change in a high-energy fast paced environment

Excellent presentation skills to diverse stakeholders in varied settings that will include groups of 150 people

Strong organizational capabilities that will facilitate strategic and efficient territory management over a large geography

Ability to travel 60-80% of time including evenings and weekends. Willingness to attend in-person impromptu trainings educational programs and business meetings as necessary. Potential territory to cover includes the following states : New York and Pennsylvania.

Valid drivers license and clean driving record

The duties of this role are generally conducted in a field environment. As is typical of a field-based role employees must be able with or without an accommodation to : travel by public transportation automobile train or plane; work comfortably in a clinical setting; use a computer; engage in communications via phone video and electronic messaging; problem solve; engage in complex and non-linear thought analysis and dialogue; collaborate with others; maintain general availability during standard business hours.

We would prefer for you to have :

At least three years field-based experience in account management patient education or sales

Experience assisting patients / caregivers

Background in advocacy counseling nursing rare disease support or social work

Understanding of community engagement groups and non-profit organizations

Understanding of managed care and self-administered products

Familiarity with relevant legal and regulatory components of the pharmaceutical and biotech industries; rare disease specific knowledge of these elements is a plus

Knowledge of Oncologic Neurologic or Rare Disease conditions

Bilingual speaker Spanish

The annual base pay for this position ranges from $135332 to $202998. Hourly and salaried non-exempt employees will also be paid overtime pay when working qualifying overtime hours. Base pay offered may vary depending on multiple individualized factors including market location job-related knowledge skills and addition our positions offer a short-term incentive bonus opportunity; eligibility to participate in our equity-based long-term incentive program (salaried roles) to receive a retirement contribution (hourly roles) and commission payment eligibility (sales roles). Benefits offered included a qualified retirement program 401(k) plan; paid vacation and holidays; paid leaves; and health benefits including medical prescription drug dental and vision coverage in accordance with the terms and conditions of the applicable plans. Additional details of participation in these benefit plans will be provided if an employee receives an offer of employment. If hired employee will be in an at-will position and the Company reserves the right to modify base pay (as well as any other discretionary payment or compensation program) at any time including for reasons related to individual performance Company or individual department / team performance and market factors.

Date Posted

18-Nov-2025

Closing Date

24-Nov-2025

Our mission is to build an inclusive environment where equal employment opportunities are available to all applicants and furtherance of that mission we welcome and consider applications from all qualified candidates regardless of their protected characteristics. If you have a disability or special need that requires accommodation please complete the corresponding section in the application form.

Required Experience :

Manager

Key Skills

IVR,Program Management,Classroom Experience,Special Education,Adult Education,Salesforce,Teaching,Curriculum Development,CRM Software,Public Speaking,Supervising Experience,Toddler Care

Employment Type : Full-Time

Experience : years

Vacancy : 1

Hourly Salary Salary : 135332 - 202998